Thursday, June 24, 2010

Oh some therapy....

So this morning we slept in a little, took a little trip to the dash inn (our new favorite lil place to eat in shelby) and then.... I pulled weeds. Lots and lots of weeds! It felt so good. It was the therapy I was needing. A little time in the sun and getting somewhere with the landscaping. I plan on doing another session soon ;)

As for Ethan... I called this morning to see how he was doing and they said he was doing good. They decided to change his feedings to 2 hours and 15 minutes now. They also decided to keep him at 2 liters on his oxygen. They decided to keep him at 3 for the last 2 days. Why I am not sure. He has these little episodes and he will do them weather he is at 2, 3, or 4 liters. It is not respiratory related... supposedly it is related to his acid reflux. Then they told me they wanted me to try breastfeeding him today! Woo hoo! So we tried this at the 4:00 cares but he was zonked out and there was no waking him up. So we tried again at 7:00 and he did ok. He latched on a couple of times then would look around then do it again. It's a step forward though and we will take it.

I have gotten a little frustrated these last few days. Sometimes I just wonder if they know what is going on with him or if they are still trying to figure it out. I have asked if what I eat could be affecting these issues... they say no. I have asked if it could be something else. They say most likely not. All the signs go towards reflux. They have him on the acid reflux meds which Seattle took him off of because they don't believe they work. 2 of the 4 docs here don't think they work. They put him on this wedge to sleep on... I haven't noticed a difference other than it's a pain in the butt to put him in it and take him out of it and all of his fluid is going to his legs so they are puffy. I just pray that it can get figured out so we can get over this hump and keep moving towards going home!

2 comments:

  1. Ahhh, pulling weeds do you picture heads of medical people, tubes, meds, etc. as you pull them out of the ground? By all means feel free to take on my garden I am sure it needs the therapy too. Latchin' on- what a big boy!! Keep it up team E!

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  2. Poor little man! I hope the Acid Reflux things gets figured out as well... and soon.

    I like your method of therapy. Mine isn't pulling weeds but it's similar, with being outside and doing something that just feels natural. Some how it really clears your mind. Take some time for yourself, it's good for you, good for Mark and good for Ethan.

    Wow Breastfeeding! That is a HUGE STEP! That is just awesome, and I bet it was awesome for you too. The fact that he latched on his first time, is really good. It may take him a bit to really go at it, but he'll learn.

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About Me

This blog started as a hobby for many reasons. It later became a way to keep the family up to date on our micro preemie baby, Ethan. Now as Ethan is nearing the 8 year mark with a little sister of 5 years I am finding a new reason to document on this blog.

Last year we were told by the school that Ethan had cerebral palsy, a blindspot and dyslexia. That is what started it all. I started taking him to doctors to find out what was going on and why this hasn't been discovered before now. In April 2017 we were told that he has executive functioning disorder. What the heck is EFD I thought?!?! After the doctor explaining it to us he basically said that if we don't start making changes now he could fall into the ADHD or possibly the autism category. Ok... so now what? What can we do?!? Well this blog is my way of documenting it all not only for me but also to help others find their way thru similar situations.

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