Amongst a few other things today Ethan got a new toy. Well if you can call it a toy. He is now sleeping on a hill. They put what is called a wedge in his crib so that he is sleeping at a severe incline to help with the reflux. They also put him on a few new medications to help with his breathing. What do I think about all of this? I don't know yet. Is it a step backward, forward, unnecessary... I don't know. I guess we will find out. We just pray that Ethan is getting what he needs so we can come home as a family soon!
Tuesday, June 22, 2010
A few changes....
Oh where do I start, what do I say? Well after my emotions have settled now after a glass of wine I think I will just keep it simple. God decided to test me today... test my patience and my communications skills. The results... lots of tears and frustrations! I don't think I ask that much from a nurse. They do Ethan's cares every 3 hours. That means they usually have to go in his room about 4 times in a shift. They have to check his blood pressure once, listen to his heart and bowel movements, put in new food in his syringe, give him his meds and if we are not there they have to check his temp, move his oxygen meter from one foot to the other, and change his diaper. That's what is required of them. I ask for that but then a few simple things. If you see his lips are gooey from the oxygen simply wipe them off so they don't get worse over time, check his hernias... yes he has 2 of them... umbilical and inguinal.... sure they say you can't even feel the inguinal hernias now but seriously they caused us an emergency flight to Seattle... just check them for me..., if he needs oxygen turn it up, if he doesn't need so much oxygen turn it down and a nurse that knows more than me! Let's just say I planned on going home to get some stuff done at the house (was very excited about it too) but the day ended with me crying and calling Mark to come to G.F. We were originally planning on going to Glacier tomorrow but part of it is closed due to snow (yes, we know it is JUNE!) so we were thinking of hiking but we will see how tomorrow goes at the hospital.
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I hear ya on the wiping the mouth- some nurses (I like their style) put Lansinoh (for breastfeeding moms) on his lips. If he was breastfeeding he would be getting it anyway right!? Chapstick for preemies! Maybe that will help keep the slugs on his lips away.
ReplyDeleteI hate the unfortunately to some people Ethan is just another patient. But he's not... he's your baby, your son, Mark's son, My nephew. I wish more healthcare workers thought that way. No on is just another patient, they are someone's loved one.
ReplyDeleteHang in there! this little time he has left in the hospital will go fast, Heck the boy is already almost 3 months old! I feel like he was born yesterday!
You all will be home soon. And I can't wait to hear that news! Then you can take care of Ethan however you see fit!