Sunday, May 30, 2010

Back Home!

So Thursday night Ethan was doing really well. They had the cpap on a rate of 5 and turned it down to 4 which was a great step and then they also wanted to do nasal canula breaks 4 times that day which is also great. They didn't tell me this until about 8pm though so then we needed to fit 2 more breaks in where he would go on the nasal canula and I hold him. Well I held him and he wasn't doing so well. We put him back to bed on the cpap. I sat in his room until 11pm watching him and his machines. His numbers continued to drop. Finally when it looked like they had him where he needed to be on the machines I headed up for bed. I told the nurse that if it continued through the night I did not want to fly back in the morning because I wanted to make sure that he was stable when we left. She said that she would pass that on to the Dr.'s. Well Friday morning came and I talked to the nurse and she said he didn't have a great night and that she was going to recommend him staying through the weekend to make sure he was ready for the transport. Ok so I went to take a shower and then found out that G.F. was on their way to get us. I went to the nurse to see what was going on and she told the Dr.'s what was going on. She came back to me saying the Dr.'s will come and look at him and then decide. Well they were not moving quickly and I knew Great Falls was starting to load the plane to come and get us. I called the Dr. in Great Falls and told him that Ethan didn't have a good night and I wasn't sure what the Dr.'s were going to say here. He canceled the transport as soon as he heard that.

So I spent all day Friday worrying about Ethan and if he was going to be ok to fly back to MT. Last time we did this flight he was doing awesome in Seattle and then took a few steps backwards when we got to MT. I didn't want this to happen. Mark and I even asked what our options were such as staying in Seattle. Of course we really didn't want to do that but we needed to know what our options were. If we wanted to stay in Seattle we would have to be transferred to another hospital as Ethan wasn't considered sick enough for the Children's hospital. I even worried if I did the right thing by jumping in and calling Great Falls to cancel the flight. Really though, if we would have flown on Friday morning like planned he would have went backwards (as he did in Seattle) only I would have thought it was due to the transport which would have caused me to think "ugh we should have stayed at another hospital in Seattle until he is ready to come home." Now we know that flying back was an ok decision. Great Falls came to pick us up on Saturday morning. Ethan flew back on the cpap and since we are at a greater elevation than Seattle we were expecting him to need more oxygen than he did when we left Seattle but he didn't! Yeah! They upped his oxygen in Seattle on Friday because he needed it all of a sudden which they think is because his steroids had wore off.

So Saturday I stayed at the hospital to make sure Ethan got all settled in and that all the information was transferred correctly. I also had to wait for Mark. He left a truck at the hospital for me but forgot to leave the keys! The Gift of Life housing is full now too so for now we don't have an apartment in Great Falls. I am hoping that something comes open again soon which I am sure it will. So Mark didn't get to the hospital until 1:30am (Sunday) since he had to work. Once he got there he was a little shocked. Ethan was in a crib! No incubator (or isolette) a real big boy crib! He was put in a crib on Friday in Seattle so they put him in a crib in G.F. It is so nice. It's just such a nice change. Mark got to hold Ethan for an hour and a half and he did really well the whole time. We left the hospital at 3am and didn't go to bed until 5am since its an hour and a half drive. Yeah, the sun was coming up as we were getting home! But it was so worth it... seeing Mark again and Mark being able to hold Ethan. It's definitely nice to be back!

4 comments:

  1. Wow a big boy crib! A great flight, doing great, and getting held by daddy.... Ethan is getting spoiled! Jk! I am sooo sooo happy he is doing SO great!
    I am also glad u are home again! Enjoy sometime with mark!
    Love u all!

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  2. So glad that you guys made it back to GF safely and that Ethan is taking steps in the right direction!
    You are so great for being so involved in his care, always best to err on the side of caution if you ask me! :)
    Love the video...David and I watched it together last night and I'm not gonna lie, it made us tear up a bit...his little facial expressions are so stinkin' cute! Melts my heart!
    Love you guys and thinking about you all the time!

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  3. Just skimmed through some of your posts and photos. BEAUTIFUL!!! You need to photograph Eli for sure (when our boys settle). Miss you guys, but glad that you're gone because that means Ethan is rockin' it. Keep it up!

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  4. Liz, Mike N EllieJune 1, 2010 at 8:11 AM

    That's awesome he's in a big boy crib!!! what a nice surprise for Mark:) He looks soooo adorable sucking on his binky!!!

    ReplyDelete

About Me

This blog started as a hobby for many reasons. It later became a way to keep the family up to date on our micro preemie baby, Ethan. Now as Ethan is nearing the 8 year mark with a little sister of 5 years I am finding a new reason to document on this blog.

Last year we were told by the school that Ethan had cerebral palsy, a blindspot and dyslexia. That is what started it all. I started taking him to doctors to find out what was going on and why this hasn't been discovered before now. In April 2017 we were told that he has executive functioning disorder. What the heck is EFD I thought?!?! After the doctor explaining it to us he basically said that if we don't start making changes now he could fall into the ADHD or possibly the autism category. Ok... so now what? What can we do?!? Well this blog is my way of documenting it all not only for me but also to help others find their way thru similar situations.

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