New meds...

So Saturday night Mark picked me up and I spent the night at home while he worked the night shift. When he got home on Sunday morning he called the nurse to see how he had done throughout the night. She said that he dropped his heart rate and they had to bag him. They also had to turn his oxygen up to 4 liters. He was at 3 in Billings. We found out that right after they got off the phone with us he had a pretty bad episode. He dropped his heart rate and they had a heck of a time getting it back up. He was not a pretty pink she said. He wasn't getting much air through his airway so they decided to add quite a few medications to his list. They were trying to figure out what was done differently in Billings that may have caused this. One thing we did in Billings was feeding him his bottle. G.F. usually waits to do that until his acid reflux is under control and he is on boulous feedings vs. the continuous feedings he is on right now. Feeding him could have caused fluid in his lungs since he has acid reflux pretty bad right now. That is just great! He was weezing pretty bad when we got to G.F. with him and we asked about it and it was kind of ignored. I guess it only got worse and that they could hear him weeszing in the hallway. I just kind of wish we could be a step ahead of the game instead of waiting for him to have an episode for them to act on it. Mark was pretty frustrated with this too.

So Sunday was a decent day for him and he only dropped his oxygen level once in the night and he recovered by himself so they didn't need to do anything. While I was here last night though he has started to lift his head on his own. They have him laying on his belly (don't do this at home I am told ;) and he was lifting his head to turn it but wouldn't make it all the way and would face plant it in the mattress. So of course his oxygen levels were dropping so I just moved his head to the side so he could breath. I asked if it could be because they have the bed at such an angle (this is to help with the acid reflux) that it is giving him leverage to do that. She said no he is just getting bigger and more active. They will do that. Ok well I understand that but how about yeah he is a stinker like that but I will make sure to watch it while you are gone. Just some comfort to know that he is taken care of while I am not here is greatly appreciated some days.