Saturday, May 15, 2010

thursday/friday

Thursday Ethan was starting to do better. He wasn't dropping his heart rate much at all. He was still eating and pooping and well that's a good day!

Friday Ethan was doing really good. He wasn't dropping his heart rate much and they were slowly weaning the cipap settings down. I can't wait til he is on the nasal canula again! They have been increasing his feedings slowly and they said that he would be at full feeds by tomorrow. That means that they will take out his tpn fluids. I have been waiting for this! When they stop the tpn fluids that means he will turn less orange, his liver will start to recover, and he will get the iv out of his little foot so both feet can go in his sleepers! They have had him on continuous feeds... meaning that the amount of milk that he would get every three hours they have it go in his belly over a 3 hour period of time. They did this to help with the acid reflux. They hope to be able to change this and slowly get him back to eating over 15 minutes or so.



1 comment:

  1. That's a lot of information in a small paragraph!
    Glad he is doing so good...
    Progress, even in small amounts, is still progress

    ReplyDelete

About Me

This blog started as a hobby for many reasons. It later became a way to keep the family up to date on our micro preemie baby, Ethan. Now as Ethan is nearing the 8 year mark with a little sister of 5 years I am finding a new reason to document on this blog.

Last year we were told by the school that Ethan had cerebral palsy, a blindspot and dyslexia. That is what started it all. I started taking him to doctors to find out what was going on and why this hasn't been discovered before now. In April 2017 we were told that he has executive functioning disorder. What the heck is EFD I thought?!?! After the doctor explaining it to us he basically said that if we don't start making changes now he could fall into the ADHD or possibly the autism category. Ok... so now what? What can we do?!? Well this blog is my way of documenting it all not only for me but also to help others find their way thru similar situations.

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