Saturday, May 8, 2010

Satuday... day 36

So today I got up early to run to a rummage sale. I was hoping to pick up a lawnmower since we don't have one since we moved. Yeah... it was gone. So I went to the hospital to check on Ethan. He had a really good night and they were planning on putting him on the sipap this afternoon. I have been holding Ethan's hand when they poke his tiny heel to get blood... this is a giant step for me! I don't like the sight of blood but a nurse told me the other day that he gives her a sad face when she pokes his heel so it made me feel really bad for him so I had to conquer my fear! Ok so it's not completely conquered... I still don't look at what they are doing but at least I can stand next to him and hold his tiny hand when they poke him! I also sat in on rounds for the first time today. Rounds is where the nurse meets with the Dr. in the morning and they make the plan for him for the day. This is another huge step for me! I don't like to hear a lot of things because I cry really easily over a lot of things but today I felt like I needed to know what the plan was.

In the afternoon I decided I needed to go to the mall. Just to get out and about. I was only gone from the hospital for 2 hours and I had to go back so that I could pump. Yeah I don't know how I could plan on going anywhere these days! Once I got back though they had just finished taking the ventilator out and put him on the sipap. The sipap is a good step forward. It is in between the ventilator and the cpap. He did really good on it so they decided to let me hold him! Yeah! So I rocked him for an hour and he did good the whole time! Ok so there was a little incident... While I was holding him he moved his head and the sipap came out of his nose... this is his way of breathing! I started to freak a little looked up and didn't see a nurse sitting outside the door and I didn't have the nurse button near me! AHHH! So I put it back in myself in a hurry. Watched the numbers on his monitor... they were fine... still looked out the window waiting for someone to walk by... anyone! Then the nutrition person stopped in to tell me she delivered my food so I asked her to get me a nurse and she said "oh you are not the person in this room?" so I of course told her no and asked for her to get me a nurse... I think she thought that I was telling her that I was a nurse. So thankfully the nurse came and I just had her check his sipap and it was fine but by that time I was a little sweaty and light headed. Uff da this child is going to give me lots of grey hairs before we leave the hospital!

He has turned a little yellow and it's because he has a different form of jaundice. It is because he has been on TPN for awhile now. TPN is the fluids they have been giving him so that he can get his nutrients since he wasn't able to eat for a long time and now he is slowly increasing his milk intake. They did have him on 1ml after Seattle and now he is up to 11ml. The yellow will go away once he starts to digest more food.

3 comments:

  1. Uff Da....You are sooo from Wisconsin:) I am happy to hear that Ethan is dong better, thinking of you always. Hope you had a great Mother's Day!

    Love,
    Kay xoxo

    ReplyDelete
  2. Hi Guys. Glad to hear Ethan's off the ventilator and headed toward the c pap. Sounds like he's growing like a weed--can't wait to see him. Post some more pictures when you can. Hope you enjoyed your first Mother's Day.

    ReplyDelete
  3. Hope your Mother's day was a good one!
    You got to hold your baby again!!!! What and awesome mother's day gift!
    Sounds like you guys have been able to do that more and more, THAT IS AWESOME!

    It is so wonderful to hear he is doing so well!!! What a little trooper!
    Hope all the good news continues!

    Love you all

    ReplyDelete

About Me

This blog started as a hobby for many reasons. It later became a way to keep the family up to date on our micro preemie baby, Ethan. Now as Ethan is nearing the 8 year mark with a little sister of 5 years I am finding a new reason to document on this blog.

Last year we were told by the school that Ethan had cerebral palsy, a blindspot and dyslexia. That is what started it all. I started taking him to doctors to find out what was going on and why this hasn't been discovered before now. In April 2017 we were told that he has executive functioning disorder. What the heck is EFD I thought?!?! After the doctor explaining it to us he basically said that if we don't start making changes now he could fall into the ADHD or possibly the autism category. Ok... so now what? What can we do?!? Well this blog is my way of documenting it all not only for me but also to help others find their way thru similar situations.

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