Wednesday, April 21, 2010

Wednesday... waiting

Ugh like today isn't hard enough! We were sitting in the waiting area and a doctor came out to talk to a grandma sitting in the waiting room. Then all of a sudden a young couple came out the door with pink baby blankets and crying. They lost their baby! Are you kidding me! OMG I am so sad for this young couple that I have never seen before. I had to leave the waiting room so they didn't see me crying for them. My heart goes out to this young couple!

After recovering from that we decided to go check on Ethan. They had tried putting an arterial line in but was unsuccessful. I really am not sure if they are going to try again or what they do in such a situation. I noticed Ethan's eyes were really puffy so I asked the nurse why and she told me it was because he was laying on that side and she just turned him over. I asked well why are both of them puffy then and she told me it was because he was laying on the other side now. I didn't like her answer. I was hoping to see another nurse or dr. before we left but there wasn't one so I asked her again. She then told me it was because they stopped giving him dopamine and lasix until after the surgery and that is why he is puffy. Mark tells me this makes sense. I of course am questioning it. I am not a huge fan of the nurse not only because of this but she seems really rough with Ethan. They don't have him bundled like they did in MT. They got blood on his bedding and seemed to just want to fold it over to hide it versus changing it but since we were in there they changed it.

So at this point I am already questioning things and we go to sit in the waiting room again. Another family was also sitting in the waiting room talking about their daughter who had down syndrome and that the dr. working on her is the only one they trust. All of a sudden the father came rushing in saying that he just got word that things were not going good and all of a sudden the whole family is rushing around. Ugh... off to another waiting room again. I really would like to rush into Ethan's room right now and scream "stop! don't touch my baby!" then grab him and take off to another hospital. If only this was an option right now! I know that we are at one of the best hospitals for children but I am really having my doubts right now and right now is not a good time to be having doubts!

3 comments:

  1. Ethan is in the Lord's hands, not just the doctor's or the hospital's. Trust that He will make it work for all of you.
    --Tom and Carol

    ReplyDelete
  2. I agree with Carol, and also, don't worry if they are not the nicest or the most professional, as long as they fix Ethan's little Heart and make him better, It doesn't matter. Soon enough you will be back in MT at a hospital you like with nurses and doctors you like.
    Hang in there!

    ReplyDelete
  3. Leah, Carol is so right. Just know though that your feelings are ok. Afterall they are your feelings. Ethan is in one of the top Childrens Hospitals in the country and even though you have see a couple of losses most of their babies go on to lead normal lives. The fact that they stopped giving him lasix makes total sense. Lasix is a water pill it gets rid of swelling. If they stopped giving it he would get puffy. she is telling you the truth. We love you Leah and I know how strong you are. You are doing great and we are so proud of you. We love you. Mom Sloan.

    ReplyDelete

About Me

This blog started as a hobby for many reasons. It later became a way to keep the family up to date on our micro preemie baby, Ethan. Now as Ethan is nearing the 8 year mark with a little sister of 5 years I am finding a new reason to document on this blog.

Last year we were told by the school that Ethan had cerebral palsy, a blindspot and dyslexia. That is what started it all. I started taking him to doctors to find out what was going on and why this hasn't been discovered before now. In April 2017 we were told that he has executive functioning disorder. What the heck is EFD I thought?!?! After the doctor explaining it to us he basically said that if we don't start making changes now he could fall into the ADHD or possibly the autism category. Ok... so now what? What can we do?!? Well this blog is my way of documenting it all not only for me but also to help others find their way thru similar situations.

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