Sunday, August 7, 2011

Preemie Mother's Oath

I came across this on another blog and felt "wow, this is me. This is what I have been trying to say. Well said."

I have sat in the NICU and waited.
I have cried and prayed.
I have endured.

Like most things in life, the people who truly have appreciation are those who have struggled to attain their dreams.
I will notice everything about my child.
I will take time to watch my child sleep, explore and discover.
I will marvel at my surviving miracle every day for the rest of my life.

I will be happy when I wake in the middle of the night to the sound of my child, knowing that I can comfort, hold and feed him and that I am not waking to a nurse taking another temperature, an alarm going off, another round of meds or because I am crying tears for fear of the unknown.
I will be happy because my baby is alive and crying out for me.

I count myself lucky in this sense; that God has given me this insight, this special vision with which I will look upon my child that my friends will not see.

Whether I parent a preemie with physical challleges or medical issues, I will not be careless with my love.

I will be a better mother for all that I have endured. I am a better wife, a better aunt, a better daughter, neighbor, friend and sister because I have known pain.

I know disillusionment as I have been betrayed by my own body.
I have been tried by fire and hell many never face, yet given time, I stood tall.

I have prevailed.
I have succeeded.
I have won.

So now, when others hurt around me, I do not run from their pain in order to save myself discomfort. I see it, mourn it, and join them in theirs.

I listen.

And even though I cannot make it better, I can make it less lonely. I have learned the immense power of another hand holding tight to mine, of other eyes that moisten as they learn to accept the harsh truth and when life is beyond hard. I have learned a compassion that only comes with walking in those shoes.

I have learned to appreciate life.

Yes I will be a wonderful mother.

Author Unknown


Yesterday we attended the NICU picnic in Great Falls. We didn't know what to expect. We didn't really think the nurses would remember us (maybe some may not want to see us, as I may have spoke my mind a few times while we were there :- / But it was great. They all remembered us and it was great to see everyone. Of course I think it was equally great for them to see how awesome Ethan is doing and to see how they help so many families. We even got to see one of the Doctors that played a huge role in taking care of Ethan. Of course our NICU mates, Eli and Lindsey, were there and the boys got matching tats. I will forever be grateful for the care that was given to Ethan as well as the friends we made in the process.

Here is Ethan and one of the Doctors....
There was a balloon release in memory of those babies that didn't make it....
Eli doing his thang ;)
Ethan at the NICU picture stand...
There were bouncy houses! Ethan liked it (although you can't really tell in this picture ;)

Ethan's tattoo (don't worry... it was washed off that night ;)

4 comments:

  1. The poem was beautiful leah... as I wipe my eyes. I can't imagine what you want through, but just remembering that time makes me so grateful so so grateful we have such a wonderful God.
    The picnic sounds like it was so much fun. What a great idea! Ethan looks like he had a blast. I bet he was the life of the party. Miss you guys! Give E a big hug and kiss from Aunt Lori, love you all

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  2. Totally printing that poem and putting it into Eli's book! Parts of that poem reminded me how grateful we went through our nicu experience at the same time.

    Awesome photos, thanks for capturing our little squeaker too.=D

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  3. Mom and Grandma JolovichAugust 12, 2011 at 8:01 AM

    That poem was beautiful. It really does sound like what you went through and Ethan couldn't ask for better parents. You would, and have done everything for that little boy and Ethan is so lucky to have you both. Can't wait to see you all next weekend.
    Love and miss you all,
    Mom and Grandma Jolovich

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  4. the poem was great, it captures a lot of emotions, thought, and prayer.
    when I first saw the photo of the ballons and read the caption. I had to close the site. It still brings tears to my eyes. I can't help thinking of all the little souls that God gives to us for just a short time and then calls them home to Him in heaven. I am so thankful that He decide to bless us with Ethan for a longer while.

    grandpa Arlan

    ReplyDelete

About Me

This blog started as a hobby for many reasons. It later became a way to keep the family up to date on our micro preemie baby, Ethan. Now as Ethan is nearing the 8 year mark with a little sister of 5 years I am finding a new reason to document on this blog.

Last year we were told by the school that Ethan had cerebral palsy, a blindspot and dyslexia. That is what started it all. I started taking him to doctors to find out what was going on and why this hasn't been discovered before now. In April 2017 we were told that he has executive functioning disorder. What the heck is EFD I thought?!?! After the doctor explaining it to us he basically said that if we don't start making changes now he could fall into the ADHD or possibly the autism category. Ok... so now what? What can we do?!? Well this blog is my way of documenting it all not only for me but also to help others find their way thru similar situations.

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