Saturday, September 18, 2010

Dreaming a little



So this morning Mark was sleeping and I was in the bathroom across from the bedroom brushing my teeth. I saw Mark sit up in bed and then look into the pack n play next to the bed. (Ethan was not in there.) So he was looking in it over the top and then laid down to look into it from the side so I stood in the doorway wondering if he was awake or not. So then he looked at me and I said what are you doing? He said "where are the restrooms?" I said "What?" followed by a huge laugh. He said "whatever, are you going to tell me where the restrooms are or not? We are having a baby." So of course I continued to laugh and start to spit toothpaste everywhere. He laid back down and said "I hate you. Fine I'll just spill milk everywhere?" I was still laughing but in the bathroom spitting my toothpaste out. I went into the bedroom to get something and he was completely out. Like nothing happened.

He had his first physical therapy appointment last Friday (the 17th.) The lady came to our house which is really nice. She did some tests to check where he is at developmentally. She said he was doing really good. He was tracking her face as she moved around, he heard sounds from all directions, he lifted his head while he was on his belly and he even rolled over for her. For some reason though Ethan doesn't want to follow a red ball with his eyes. No idea why. He tracks faces but wont track a red ball. So we are working on that. She has also showed us ways to help him move towards sitting up. One thing she mentioned though I got a little upset about. I know, me, shocker! Well his head is a little flat on the sides from being in the NICU for so long and laying on his sides. She asked if the NICU used a halo. I said not that I know of, what is it? Well it's this circle thing that you lay his head in so he doesn't lay his head from side to side. What makes me a little irritated is that he has been out of the NICU now for 2 months and not one person has mentioned this to me. Not one. He has been to his pediatrician numerous times, had the quality of life over a few times, the county nurse... not one of them said anything about it. Why didn't we notice you ask? I don't know. We talked about it. We knew that it happened to babies in the NICU but we didn't think Ethan's was like that. I think it was part parental fog. You know... our baby is perfect fog. So now Ethan has sleep with his head propped so he is looking straight up instead of laying on one side or the other. This is to ensure his brain doesn't get funny shaped.

Then last Sunday I ran to the store and as I was coming in Mark jumped up off the floor and said "you just missed it!" I said "what?" He said "he just rolled over like 3 times and the last time was as you were walking in the door!" Oh yeah... I missed it again. But at least Mark saw it. Then he was doing it again on Monday! Yeah. He goes in streaks though. I think we just have to get the timing down on when to put him down for tummy time.

So here are a few pictures of our little man...


This last one... I love it. I know. Cruel isn't it. I was actually trying to take a picture of both of us with the go go gadget arm but this is what I got. And I love it.

1 comment:

  1. LOL!!!! I love the stories of Mark sleep walking/talking!!! So funny, I can just picture it and hear you laughing! It's funny Mark still has dreams about having a baby.. I still have wedding nightmares! lol

    Bummer that Ethan has to sleep on that thing, but you don't want a funny shaped brain! :) I don't think you had parental fog.. I think he really is perfect!

    I hope one of these times you can get Ethan rolling over on video!
    Love the pics!!!! He is just Beautiful!

    ReplyDelete

About Me

This blog started as a hobby for many reasons. It later became a way to keep the family up to date on our micro preemie baby, Ethan. Now as Ethan is nearing the 8 year mark with a little sister of 5 years I am finding a new reason to document on this blog.

Last year we were told by the school that Ethan had cerebral palsy, a blindspot and dyslexia. That is what started it all. I started taking him to doctors to find out what was going on and why this hasn't been discovered before now. In April 2017 we were told that he has executive functioning disorder. What the heck is EFD I thought?!?! After the doctor explaining it to us he basically said that if we don't start making changes now he could fall into the ADHD or possibly the autism category. Ok... so now what? What can we do?!? Well this blog is my way of documenting it all not only for me but also to help others find their way thru similar situations.

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