Sunday, June 20, 2010

Father's Day

Today brings a whole new meaning to father's day for us. The last few years I would think about my father and how much I miss him, how I wished Mark could have met him, how he was such an awesome dad and how life just isn't fair sometimes. This father's day is a beginning of new traditions for the Sloan family. Well, hopefully the following fathers days we wont spend in the hospital but we will all be together. Mark had to work on Sunday morning so he came up afterwards for a little bit. He got to hold Ethan and then we went out to lunch. I felt so bad for Mark because I could tell he was beat. I made him a video (which you can see at: http://vimeo.com/12748149 ), some burp clothes... not just any burp clothes... they were made from material with camo and skulls... Mark loved them! He has something else coming in the mail too.

Ethan has been doing super great these last few days. He is on 2 liters of oxygen on the high flow nasal canula. What does this mean? Well when they turn his oxygen down again he will go on the low flow nasal canula! Why such a big deal? Well the low flow nasal canula is the oxygen machine he can go home on! Yeah, I would prefer him to not have to go home on oxygen but if he needs it of course we will take him home on it... duh ;) The other good news is they are starting to shorten his feeds. He has been on continuous feeding and now they are starting to condense his feedings. Right now he is getting his full feeds over 2.5 hours with a half hour break. Before he was getting it over 3 hours with no break. So now they will slowly decrease it until he is at a half hour feed time. Then comes time to try the bottle and breast feeding. We can see the end of the tunnel but it is going to be a little bit yet. Hey, I am just glad they don't expect me to take him home on continuous feeding... just latch him on all day!

3 comments:

  1. Wow the progress! We won't even recognize Ethan and his new skills and that's AWESOME! Thanks for the update, we're so glad to hear things are doing well. Can't wait to hear when you are homeward bound because that means we are shortly behind you.

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  2. WOW what a good Father's day for Mark! Filled with great news!!!!
    I am relieved Ethan is doing so well. Can't wait till you guys are home, and get to deal with things like late night feedings and easy stuff like that. I can't wait to watch the video! I could stare at my nephew all day!

    Love you guys!
    Keep up the good work Ethan!

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  3. That video is soo sweet Leah it made me cry! Hope you and the family are doing okay can't wait to meet Ethan some day.

    Thinking of you
    Love Nichole

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About Me

This blog started as a hobby for many reasons. It later became a way to keep the family up to date on our micro preemie baby, Ethan. Now as Ethan is nearing the 8 year mark with a little sister of 5 years I am finding a new reason to document on this blog.

Last year we were told by the school that Ethan had cerebral palsy, a blindspot and dyslexia. That is what started it all. I started taking him to doctors to find out what was going on and why this hasn't been discovered before now. In April 2017 we were told that he has executive functioning disorder. What the heck is EFD I thought?!?! After the doctor explaining it to us he basically said that if we don't start making changes now he could fall into the ADHD or possibly the autism category. Ok... so now what? What can we do?!? Well this blog is my way of documenting it all not only for me but also to help others find their way thru similar situations.

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