Tuesday, May 25, 2010

More Seattle...

So we found out that the Dr.'s in Great Falls wants us to wait in Seattle until they are certain Ethan's hernia is stable and after his next eye test. Premature babies have eye tests weekly when they reach a certain age. Ethan had his first one last week and it was fine. If they find something in the eye test he would have to have surgery on them and Great Falls doesn't do the surgery there. Normally they send their patients to Kalispell or Billings, MT for this but since we are in Seattle where of course they do the surgery they figure we might as well make sure that is fine before flying back only to fly again. The eye test is tomorrow so hopefully he will have a good test result. If he does have to have eye surgery though I kind of hope that it shows up now so he can have it done in Seattle vs waiting and then having to fly (again) to Billings to have it done.

They also wanted to make sure that he was able to handle being on the cpap. The reason for this is that the cpap pushes air in his body and they want to make sure it doesn't push the bowel down again. They tried putting him on the cpap on Sunday and it didn't work so yesterday they put him on a trial on the ventilator at a lower setting to make sure he could handle the cpap and he did great. So today they put him on the cpap. The nurse asked if I wanted to hold him before they did it... of course I said yes. While I was holding him I was watching his numbers on the screen and his heart rate was much lower than it is usually is. It was like this before I held him as well. His heart rate was between 100-120 when normally it has been 120-140. I pointed this out to the Dr. before they put him on cpap and they still went ahead with the cpap. He has been on the cpap for 2 hours now and doing good. It makes me a little nervous to fly back on the cpap because he was on the sipap before we left MT (which gave him more assistance in breathing.)

They put some clothes on him today... he has been naked since we got to Seattle! They also put his feeding tube in his nose instead of his mouth now. They did it only because the tube kept bowing out of his mouth so they tried the nose and it did the same thing. I also picked him up a cute little stuffed animal because he doesn't have anything to look at... silly me I didn't pack a stuffed animal with my 1 hour notice we were leaving!

1 comment:

  1. I hope Ethan's Eye test went ok. And I am glad to hear that he is doing so well with the CPap this time. Hopefully he continues to do well with that and doesn't have to be on the ventilator again.

    No stuffed animals? Does he need more stuffed animals, I don't think I have gotten him a stuffed animal yet have I? :)

    ReplyDelete

About Me

This blog started as a hobby for many reasons. It later became a way to keep the family up to date on our micro preemie baby, Ethan. Now as Ethan is nearing the 8 year mark with a little sister of 5 years I am finding a new reason to document on this blog.

Last year we were told by the school that Ethan had cerebral palsy, a blindspot and dyslexia. That is what started it all. I started taking him to doctors to find out what was going on and why this hasn't been discovered before now. In April 2017 we were told that he has executive functioning disorder. What the heck is EFD I thought?!?! After the doctor explaining it to us he basically said that if we don't start making changes now he could fall into the ADHD or possibly the autism category. Ok... so now what? What can we do?!? Well this blog is my way of documenting it all not only for me but also to help others find their way thru similar situations.

  © Free Blogger Templates 'Photoblog II' by Ourblogtemplates.com 2008

Back to TOP