Tuesday, May 11, 2010

Monday


Mark came up first thing this morning. Sometimes it feels like forever since I have seen him last! He gave me my mothers day card in the morning. He is so funny. He knows that I am a huge card person. He could get me absolutely nothing but if he got me a card and wrote it in like he always does I am the happiest girl in the world. So he delayed on picking up a mothers day card but he wrote down what he was going to write in the card so that when he did get a card he could do it quick when he got to the hospital. Well he ran into Wal-Mart to pick up a card and they were taking them down. Why? Well it is the day AFTER mother's day ;)

Anytime Mark is able to be at the hospital I let him do all the cares. I figure I am there doing all the cares when he is not there the least I can do is let him do them when he is able to. I have to admit though, I have been cheering Ethan on for a big poopie diaper for his dad. Today Dad got to change his first poopie diaper! Yeah! I'm not going to lie... it was pretty funny to watch! The nurse gave him pointers to get the job done though... of course the nurse and I had a few laughs though! Just a few more poopie diapers though and Dad will be a pro!

We had a care conference today. It was basically a meeting with the Dr., the nurse practitioner, the social worker, the nurse on for today and a nurse who came in on her day off so she could be there for us. This nurse I am talking about is also the nurse that took us to Seattle, picked us up from Seattle, has been his nurse a lot and so many other things... lets just say she is awesome and we like her a lot! I sleep in on the days I know she is on because I know he is being well taken care of. So the meeting just went over all the things that they have done for him since he was born and then all the possible side effects along with things that we can do to help. I am so thankful that I am able to stay with Ethan now in the hospital but also when he gets to come home. We may have to do speech, physical and/or occupational therapy. They also pointed out that some parents do all they can and some just don't care. Well we will do anything we can to help our little man out and it's just going to be easier since I will be home with him. They also told us that since he has lung disease that we won't be able to take him in public places for at least a year. This means we will have to have only one of us go to the grocery store or other things we need to do. This will be a little interesting but hey as long as he gets to come home with us we will do whatever we need to do. I hate when they say he has "chronic lung disease" because it is due to him being born early. This will eventually go away as his lungs build new tissue it just takes time. They also refer to him as being very sick. I don't know why but I don't like it. For some reason I don't see OUR baby as being sick. I know that he was born early and that he needs some help before he goes home but I don't see him as being sick. I know he is technically "sick" but in my mind he isn't.

Mark took me out for a nice dinner for Mother's Day and I was not feeling very well. I was feeling pretty achey, chills, then hot, and emotional (meaning I cried a lot ;). I decided I should pick up a thermomater to see if I was running a fever. My temp was normal. Guess it was just a rough day!


5 comments:

  1. Leah, I just wanted to say, "hang in there baby" You are doing a great job. I know things get tough and that there are bad days, but the good far out number the bad. I think that it is extremely hard to have such a beautiful little life given to you and not be able to hold him and care for him as you see fit and hold him whenever you want to. But you are doing a super job. so it is ok to let your emotions come out. You are a mother and thats what mothers do. Don't worry about the negative comments, there are a lot of people that couldn't do the job you are doing and that is why God chose you, because He has given you the strength to handle it. So keep it up and remember that there is a lot of people praying for you, Ethan, and Mark.

    grandpa Arlan

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  2. Hi there! You are already an amazing mother... I thought about you Sunday but am just getting around at telling you so. I am right there with you about the cards. Some holidays Daniel just exchange cards with sweet letters inside. We are blessed with sweet hubbies!! We pray for you every day...

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  3. YAY FOR POOP!!!! It was like Father's day and Mother's day all in one!! lol

    I am so glad Ethan is doing good, and I am so glad that the doctors and everyone sees how wonderful his parents are. You really are!
    I guess I didn't realize he had "lung disease" But I have alot to learn about kids before I have them. At least it will go away. That is GOOD!

    I agree with you Leah, I don't see him as being sick either. He's just little, REALLY little! That's all.
    But like dad said, don't worry about the comments, it's all doctor talk anyway. You are doing a great Job, and Mark is doing a great job, and ETHAN is doing an AMAZING job. And don't worry about the tears, they will come and go for the rest of Ethan's life. Happy, Sad, and you have no idea why tears. Let them flow, it's good for you!

    Love you all.... I hope you all keep doing good!

    p.s. I changed my "name on here just because dad did" haha

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  4. Love the pic of daddy and his baby boy!!!!

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  5. Mark, You look awesome holding that baby boy. Dad and I sit here hopeing for good news every day. Leah, You are a good mom. There is no instruction book givin to moms we go with our heart. Arlan was right it is ok to be vocal about your feelings, mothers have alot of them not only when their babies but when they grow and become mommies and Daddies as well. We love you both and are having many tears along with you. We love you you are our family. We are sitting along side of you as is your Heavenly Father, he is knitting Ethan together even now. We love you,. Mom Sloan

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About Me

This blog started as a hobby for many reasons. It later became a way to keep the family up to date on our micro preemie baby, Ethan. Now as Ethan is nearing the 8 year mark with a little sister of 5 years I am finding a new reason to document on this blog.

Last year we were told by the school that Ethan had cerebral palsy, a blindspot and dyslexia. That is what started it all. I started taking him to doctors to find out what was going on and why this hasn't been discovered before now. In April 2017 we were told that he has executive functioning disorder. What the heck is EFD I thought?!?! After the doctor explaining it to us he basically said that if we don't start making changes now he could fall into the ADHD or possibly the autism category. Ok... so now what? What can we do?!? Well this blog is my way of documenting it all not only for me but also to help others find their way thru similar situations.

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