Monday, May 3, 2010

Monday... good changes...

So today when we got to the hospital Ethan had a nurse that he hasn't had before. Of course Mark told me to give her a chance right away... what... did I say anything? Ok so I wasn't extremely fond of her but she did do something that I liked. Ethan wasn't doing very well because his numbers kept going up and down very quickly and that hasn't been normal for him. So she asked the Dr. what he wanted her to do. He told her to take him off the ventilator and put him on the c-pap. Soon they were doing just that. Of course I stepped out of the room but Mark stayed to watch. I guess when they switched him he didn't breathe for like a minute! Yep, good thing I stepped out! Of course he was fine but they do that just like when they are born they don't breathe right away. So now it's just waiting to see how he does on this and praying he doesn't have to go back on the ventilator.

Later, Mark and I decided it was time we bought a chest freezer. We have been talking about it for the last month since our home freezer has been taken over with breast milk. We have been told that breast milk is only good for 24 hours in the refrigerator, 3 months in a normal freezer and 6 months in a deep freeze (chest freezer.) I have been very fortunate to be getting a lot of milk and I want to keep freezing it all just in case something were to happen that I wouldn't be able to get any more milk when he is actually eating a lot of it. While shopping Mark came up with a new saying. I asked him if he was going to continue doing laundry and cleaning when Ethan and I are back at home with him as a family. His response was "well of course." Followed by "offer subject to change, please see fine print." So of course I laughed really hard but then everything we talked about after that was ..... offer subject to change! He definitely keeps me laughing which is what I really needed... have I mentioned that I have the best husband in the world! (please see fine print! lol!)

After picking that up Mark dropped me off at the hospital. The nurse informed me that she was going to put clothes on him! Yeah! That means I can finally bring in some of his preemie clothes that we have been given! And he got to be really swaddled! Yeah! The only thing that stinks about it is that all the clothes are at our house and I don't plan on going back there for a few days now... but that's ok... he gets to wear clothes ;) I also got to hear a little cry! The nurse took the iv out of his arm and there was a sticker holding it in so when she took it off he cried a little! I felt bad for him of course but it was so good to hear his little voice! I hope to hear it more now that he is not on the ventilator.

3 comments:

  1. Oh my gosh, just another line for Andy and Drew to repeat. You know like "details, details". OK so I am laughing outloud visioning Mark say this.

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  2. Hahah, only Mark! Thinking of you guys and hope all is well:)

    Love ya,
    Kayla xoxo

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  3. LOL Man oh Man that sounds like Mark, but it's so true!!! I think everyone can use that!
    Clothes! That is exciting! I can't wait to see pics of him in his cute little outfits. And a cry, I bet to you that was the best sound in the world. How wonderful!
    I hope you all keep doing so well, I am always thinking about you and praying for you!

    ReplyDelete

About Me

This blog started as a hobby for many reasons. It later became a way to keep the family up to date on our micro preemie baby, Ethan. Now as Ethan is nearing the 8 year mark with a little sister of 5 years I am finding a new reason to document on this blog.

Last year we were told by the school that Ethan had cerebral palsy, a blindspot and dyslexia. That is what started it all. I started taking him to doctors to find out what was going on and why this hasn't been discovered before now. In April 2017 we were told that he has executive functioning disorder. What the heck is EFD I thought?!?! After the doctor explaining it to us he basically said that if we don't start making changes now he could fall into the ADHD or possibly the autism category. Ok... so now what? What can we do?!? Well this blog is my way of documenting it all not only for me but also to help others find their way thru similar situations.

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